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Last Day of Chemo

Snuggling with Daddy and eating ice chips after surgery

When you’re in the middle of something really challenging and scary, it feels like it will never end. And then when you’re at the end, it sometimes feels like the whole thing was a blip. That’s how Jenna’s chemotherapy has felt

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Counting Down

photo3JennaJan2014

Three weeks until Jenna’s official end of chemo date and we’ve been counting down the days …… On March 14 we will be finished with this phase of her treatment. We fluctuate between feeling excited about being almost finished, and

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A Silent Warrior

IMG_1807TiffJennaDec2013

For most of the past two years, and for no obvious reason, I’ve been pulled from sleep once or more a night by pounding in my ears and racing heart. I’ve thought for a while I should see a doctor

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13 Most Popular Posts of 2013

IMG_2426JennaNov2013

This year my focus was mainly on my family, specifically, caring for our now 2-year-old daughter as she has gone through chemotherapy and treatment for liver damage. As 2013 comes to a close and I look back at all we’ve been

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Living With Uncertainty

TiffJennaSep2013

Jenna, our 2-year-old, has had a feeding tube for over half her life now. When she first had it put in, I never expected more than a year later she would still need it or that we would have made

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52 Pillows – #25 – Morbid

#25 Morbid

If you’ve ever been through a completely insane experience, an event that turned your life completely upside down, you can probably appreciate the value of a morbid sense of humor in getting through the experience. I know we have. Halloween

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New Normal ABCs

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After months of intense chemotherapy and frequent hospital stays, things are calming down somewhat and Jenna is stable. Here’s a glimpse of what our “new normal” looks like, Sesame Street style…  = ) A. Albumin infusions every month or so. B.

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How We’ve Coped and Found Peace While Our Child Has Undergone Chemo – Part 2

jenna2may2013

Since publishing Part 1 of How We’ve Coped and Found Peace we’ve had many opportunities to test our own advice. In late April, Jenna’s belly became very distended, a condition called ascites (fluid around her abdominal organs caused by liver damage), and had to

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How We’ve Coped and Found Peace While Our Child Has Undergone Chemo – Part 1

Tomorrow morning Jenna will have her 4th biopsy procedure. Or is it her 5th? Or 6th? She’s had so many in the past 8 months I’ve lost track. I’m trying not to think about that point where we’ll hand her

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Good News and Different News

Our little sweetie pie!

We threw caution to the wind after Jenna’s liver biopsy last week. We figured whatever the results of her biopsy, things would be changing again and it may be our last chance for a while to not worry incessantly about

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , , ,

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