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How to Help a Family Who Has a Child with Cancer

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Many people asked how they could help us during the 18 months our young daughter went through chemotherapy for a rare disease called LCH. At the time, there were often too many things happening to really think about or be

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , ,

Last Day of Chemo

Snuggling with Daddy and eating ice chips after surgery

When you’re in the middle of something really challenging and scary, it feels like it will never end. And then when you’re at the end, it sometimes feels like the whole thing was a blip. That’s how Jenna’s chemotherapy has felt

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , ,

Counting Down

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Three weeks until Jenna’s official end of chemo date and we’ve been counting down the days …… On March 14 we will be finished with this phase of her treatment. We fluctuate between feeling excited about being almost finished, and

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , ,

New Normal ABCs

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After months of intense chemotherapy and frequent hospital stays, things are calming down somewhat and Jenna is stable. Here’s a glimpse of what our “new normal” looks like, Sesame Street style…  = ) A. Albumin infusions every month or so. B.

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , , , ,

How We’ve Coped and Found Peace While Our Child Has Undergone Chemo – Part 2

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Since publishing Part 1 of How We’ve Coped and Found Peace we’ve had many opportunities to test our own advice. In late April, Jenna’s belly became very distended, a condition called ascites (fluid around her abdominal organs caused by liver damage), and had to

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , , , ,

How We’ve Coped and Found Peace While Our Child Has Undergone Chemo – Part 1

Tomorrow morning Jenna will have her 4th biopsy procedure. Or is it her 5th? Or 6th? She’s had so many in the past 8 months I’ve lost track. I’m trying not to think about that point where we’ll hand her

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , ,

Good News and Different News

Our little sweetie pie!

We threw caution to the wind after Jenna’s liver biopsy last week. We figured whatever the results of her biopsy, things would be changing again and it may be our last chance for a while to not worry incessantly about

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , , ,

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