Blog Archives

The 9 Months In–9 Months Out Theory

Jenna clown with Daddy

When I was pregnant with my son and my body was expanding in every direction, I asked my midwife, “How long will it take for my body to get back to normal?” She said, “Most women take about 9 months to get

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , , ,

Our 12 Favorite Charities

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On our journey traversing the medical world with our daughter, Jenna, we’ve been honored to be assisted by and involved with some amazing charitable organizations. In the spirit of the holidays (and Giving Tuesday), here are our favorites. All are wonderful

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , , ,

The Summer of Learning to Live Again

View from the Queen Mary deck

The summer of our Learning to Live Again project was kicked off with a trip to Long Beach, California, for my birthday. We haven’t flown anywhere in about 2 years, not since Jenna has had a feeding tube. We weren’t really

Posted in Blog Posts, Fabric of Life Tagged with: , , , ,

Tiny Sparrow Foundation

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Earlier this year we became a recipient of Tiny Sparrow Foundation, a non-profit organization that provides enduring memories through the beauty of photography to families with children who are facing life threatening diseases. By coordinating with photographers nationwide, they gift each family with

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , ,

More Learning to Live Again

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In February, as we drew closer to the end of Jenna’s chemotherapy, we realized we had been so wrapped up in “the cancer world”, afraid of exposing Jenna to any kind of infection, trying so hard to protect her, to

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , ,

How to Help a Family Who Has a Child with Cancer

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Many people asked how they could help us during the 18 months our young daughter went through chemotherapy for a rare disease called LCH. At the time, there were often too many things happening to really think about or be

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , ,

Learning to Live Again

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As we approached the end of Jenna’s chemotherapy earlier this month, we thought about what might change once her treatment was finished. The more we thought about it, the more we realized… not a lot. She still has the feeding

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , ,

Last Day of Chemo

Snuggling with Daddy and eating ice chips after surgery

When you’re in the middle of something really challenging and scary, it feels like it will never end. And then when you’re at the end, it sometimes feels like the whole thing was a blip. That’s how Jenna’s chemotherapy has felt

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , ,

Counting Down

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Three weeks until Jenna’s official end of chemo date and we’ve been counting down the days …… On March 14 we will be finished with this phase of her treatment. We fluctuate between feeling excited about being almost finished, and

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , ,

A Silent Warrior

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For most of the past two years, and for no obvious reason, I’ve been pulled from sleep once or more a night by pounding in my ears and racing heart. I’ve thought for a while I should see a doctor

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , , ,

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