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13 Most Popular Posts of 2013

IMG_2426JennaNov2013

This year my focus was mainly on my family, specifically, caring for our now 2-year-old daughter as she has gone through chemotherapy and treatment for liver damage. As 2013 comes to a close and I look back at all we’ve been

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , ,

Living With Uncertainty

TiffJennaSep2013

Jenna, our 2-year-old, has had a feeding tube for over half her life now. When she first had it put in, I never expected more than a year later she would still need it or that we would have made

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , , ,

So Grateful

RyJennaMarkAug2013

As we celebrated Jenna’s 2nd birthday this week and as the one-year anniversary of Jenna’s diagnosis approaches, I feel nothing but gratitude… I am so grateful for Jenna, for her sweet, glorious spirit, her breathtaking smile, her delight in life

Posted in Blog Posts, Fabric of Life Tagged with: , , , , ,

52 Pillows – #25 – Morbid

#25 Morbid

If you’ve ever been through a completely insane experience, an event that turned your life completely upside down, you can probably appreciate the value of a morbid sense of humor in getting through the experience. I know we have. Halloween

Posted in 52 Pillows Project, Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , , , ,

New Normal ABCs

photo-2

After months of intense chemotherapy and frequent hospital stays, things are calming down somewhat and Jenna is stable. Here’s a glimpse of what our “new normal” looks like, Sesame Street style…  = ) A. Albumin infusions every month or so. B.

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , , , ,

How We’ve Coped and Found Peace While Our Child Has Undergone Chemo – Part 2

jenna2may2013

Since publishing Part 1 of How We’ve Coped and Found Peace we’ve had many opportunities to test our own advice. In late April, Jenna’s belly became very distended, a condition called ascites (fluid around her abdominal organs caused by liver damage), and had to

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How We’ve Coped and Found Peace While Our Child Has Undergone Chemo – Part 1

Tomorrow morning Jenna will have her 4th biopsy procedure. Or is it her 5th? Or 6th? She’s had so many in the past 8 months I’ve lost track. I’m trying not to think about that point where we’ll hand her

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , ,

Good News and Different News

Our little sweetie pie!

We threw caution to the wind after Jenna’s liver biopsy last week. We figured whatever the results of her biopsy, things would be changing again and it may be our last chance for a while to not worry incessantly about

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , , ,

Round 3 … Ding! Ding! Ding! Ding! Ding!

JennaFeb2013

As I waited for the hospital to call last Monday to tell us whether Jenna’s blood counts were high enough for her next round of chemo, I was so hoping they’d say, “Jenna’s completely healed! You don’t have to come

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , ,

Last Year, Continued

jenna again dec 4

My little Jenna and I are in the hospital again this week. I didn’t feel well a lot of last week – neck and back pain, headache, nausea, dizziness, insomnia… do you think maybe I was stressed about this? Definitely…

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , ,

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