Blog Archives

When You Wish Upon A Star

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When you wish upon a star Makes no difference who you are Anything your heart desires Will come to you… Make-A-Wish Foundation rounded out Jenna’s wish experience with her Star Raising Party in July. Ideally the party would have been within a

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , ,

Princess Jenna

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We just had to get new family pictures after Jenna was rid of her feeding tube in May. We were able to work with Gina at Little Lubby Dubby Photography again. She is an amazing lady who is not only super talented, she

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Homeschool 6th Grade – What Worked, What Didn’t Work

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Our homeschool year has ended and before we delve into 7th grade choices, looking at what worked and what didn’t work during our son’s 6th grade year seems necessary. Since this was our first year of homeschooling on our own and I didn’t really

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No More Feeding Tube!

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As Jenna’s liver doctor watched her chowing down on pistachios last week at our quarterly visit to get Jenna’s feeding tube changed, he said, “Let’s try it without the tube.” Wooooooo-Hoooooo! “I feel like jumping up and down,” my husband

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , ,

Make a Wish

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Jenna had her wish to meet a dolphin granted in April by the Make-A-Wish Foundation. This amazing organization grants the wishes of children with life-threatening diseases, whether they wish to go somewhere, meet someone, be someone or have something. We were

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The 9 Months In–9 Months Out Theory

Jenna clown with Daddy

When I was pregnant with my son and my body was expanding in every direction, I asked my midwife, “How long will it take for my body to get back to normal?” She said, “Most women take about 9 months to get

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Our 12 Favorite Charities

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On our journey traversing the medical world with our daughter, Jenna, we’ve been honored to be assisted by and involved with some amazing charitable organizations. In the spirit of the holidays (and Giving Tuesday), here are our favorites. All are wonderful

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Tiny Sparrow Foundation

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Earlier this year we became a recipient of Tiny Sparrow Foundation, a non-profit organization that provides enduring memories through the beauty of photography to families with children who are facing life threatening diseases. By coordinating with photographers nationwide, they gift each family with

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Kids Art Show

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The school year came to an end so quickly, before I knew it there were only 4 weeks to plan the kids’ art show for our little homeschool class!… We decided to reserve the library auditorium – plenty of space, chairs and

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Fun with Paint Chips: A Homeschool Art Project

14" x 22" (1st grader)

A big box of full-page paint chips was donated to our little school recently and I have been trying to figure out what we could do with it. So I decided to make it a Paint Chip Art Project Day.

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