Blog Archives

When You Wish Upon A Star

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When you wish upon a star Makes no difference who you are Anything your heart desires Will come to you… Make-A-Wish Foundation rounded out Jenna’s wish experience with her Star Raising Party in July. Ideally the party would have been within a

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Princess Jenna

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We just had to get new family pictures after Jenna was rid of her feeding tube in May. We were able to work with Gina at Little Lubby Dubby Photography again. She is an amazing lady who is not only super talented, she

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No More Feeding Tube!

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As Jenna’s liver doctor watched her chowing down on pistachios last week at our quarterly visit to get Jenna’s feeding tube changed, he said, “Let’s try it without the tube.” Wooooooo-Hoooooo! “I feel like jumping up and down,” my husband

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Make a Wish

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Jenna had her wish to meet a dolphin granted in April by the Make-A-Wish Foundation. This amazing organization grants the wishes of children with life-threatening diseases, whether they wish to go somewhere, meet someone, be someone or have something. We were

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The 9 Months In–9 Months Out Theory

Jenna clown with Daddy

When I was pregnant with my son and my body was expanding in every direction, I asked my midwife, “How long will it take for my body to get back to normal?” She said, “Most women take about 9 months to get

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Our 12 Favorite Charities

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On our journey traversing the medical world with our daughter, Jenna, we’ve been honored to be assisted by and involved with some amazing charitable organizations. In the spirit of the holidays (and Giving Tuesday), here are our favorites. All are wonderful

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The Summer of Learning to Live Again

View from the Queen Mary deck

The summer of our Learning to Live Again project was kicked off with a trip to Long Beach, California, for my birthday. We haven’t flown anywhere in about 2 years, not since Jenna has had a feeding tube. We weren’t really

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Tiny Sparrow Foundation

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Earlier this year we became a recipient of Tiny Sparrow Foundation, a non-profit organization that provides enduring memories through the beauty of photography to families with children who are facing life threatening diseases. By coordinating with photographers nationwide, they gift each family with

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More Learning to Live Again

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In February, as we drew closer to the end of Jenna’s chemotherapy, we realized we had been so wrapped up in “the cancer world”, afraid of exposing Jenna to any kind of infection, trying so hard to protect her, to

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How to Help a Family Who Has a Child with Cancer

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Many people asked how they could help us during the 18 months our young daughter went through chemotherapy for a rare disease called LCH. At the time, there were often too many things happening to really think about or be

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