Blog Archives

Make a Wish

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Jenna had her wish to meet a dolphin granted in April by the Make-A-Wish Foundation. This amazing organization grants the wishes of children with life-threatening diseases, whether they wish to go somewhere, meet someone, be someone or have something. We were

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , ,

The 9 Months In–9 Months Out Theory

Jenna clown with Daddy

When I was pregnant with my son and my body was expanding in every direction, I asked my midwife, “How long will it take for my body to get back to normal?” She said, “Most women take about 9 months to get

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , , ,

Our 12 Favorite Charities

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On our journey traversing the medical world with our daughter, Jenna, we’ve been honored to be assisted by and involved with some amazing charitable organizations. In the spirit of the holidays (and Giving Tuesday), here are our favorites. All are wonderful

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , , ,

The Summer of Learning to Live Again

View from the Queen Mary deck

The summer of our Learning to Live Again project was kicked off with a trip to Long Beach, California, for my birthday. We haven’t flown anywhere in about 2 years, not since Jenna has had a feeding tube. We weren’t really

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More Learning to Live Again

lego

In February, as we drew closer to the end of Jenna’s chemotherapy, we realized we had been so wrapped up in “the cancer world”, afraid of exposing Jenna to any kind of infection, trying so hard to protect her, to

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52 Pillows – #33 – The Liver Pillow

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Lots of body parts enjoy the benefit of pillows… Our heads sink into pillows each night. Our backs rest against cushions. Our bottoms are cradled by cushions. Our feet enjoy being propped on pillows. But what about our internal parts,

Posted in 52 Pillows Project, Blog Posts, Fabric of Life, Home Decor, Liver Transplant Tagged with: , , , ,

A Silent Warrior

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For most of the past two years, and for no obvious reason, I’ve been pulled from sleep once or more a night by pounding in my ears and racing heart. I’ve thought for a while I should see a doctor

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , , ,

Living With Uncertainty

TiffJennaSep2013

Jenna, our 2-year-old, has had a feeding tube for over half her life now. When she first had it put in, I never expected more than a year later she would still need it or that we would have made

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So Grateful

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As we celebrated Jenna’s 2nd birthday this week and as the one-year anniversary of Jenna’s diagnosis approaches, I feel nothing but gratitude… I am so grateful for Jenna, for her sweet, glorious spirit, her breathtaking smile, her delight in life

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52 Pillows – #25 – Morbid

#25 Morbid

If you’ve ever been through a completely insane experience, an event that turned your life completely upside down, you can probably appreciate the value of a morbid sense of humor in getting through the experience. I know we have. Halloween

Posted in 52 Pillows Project, Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , , , ,

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