Blog Archives

Living With Uncertainty

TiffJennaSep2013

Jenna, our 2-year-old, has had a feeding tube for over half her life now. When she first had it put in, I never expected more than a year later she would still need it or that we would have made

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , , ,

So Grateful

RyJennaMarkAug2013

As we celebrated Jenna’s 2nd birthday this week and as the one-year anniversary of Jenna’s diagnosis approaches, I feel nothing but gratitude… I am so grateful for Jenna, for her sweet, glorious spirit, her breathtaking smile, her delight in life

Posted in Blog Posts, Fabric of Life Tagged with: , , , , ,

52 Pillows – #25 – Morbid

#25 Morbid

If you’ve ever been through a completely insane experience, an event that turned your life completely upside down, you can probably appreciate the value of a morbid sense of humor in getting through the experience. I know we have. Halloween

Posted in 52 Pillows Project, Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , , , ,

New Normal ABCs

photo-2

After months of intense chemotherapy and frequent hospital stays, things are calming down somewhat and Jenna is stable. Here’s a glimpse of what our “new normal” looks like, Sesame Street style…  = ) A. Albumin infusions every month or so. B.

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , , , ,

How We’ve Coped and Found Peace While Our Child Has Undergone Chemo – Part 2

jenna2may2013

Since publishing Part 1 of How We’ve Coped and Found Peace we’ve had many opportunities to test our own advice. In late April, Jenna’s belly became very distended, a condition called ascites (fluid around her abdominal organs caused by liver damage), and had to

Posted in Blog Posts, Fabric of Life, LCH and Chemo Tagged with: , , , , , ,

Good News and Different News

Our little sweetie pie!

We threw caution to the wind after Jenna’s liver biopsy last week. We figured whatever the results of her biopsy, things would be changing again and it may be our last chance for a while to not worry incessantly about

Posted in Blog Posts, Fabric of Life, LCH and Chemo, Liver Transplant Tagged with: , , , , ,

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